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Having A Disable Child, What’s Next?

Many parents when they knew that they were given disabled children would spend some time blaming themselves, it is OK, if this happen to you, this is normal. But dragging yourself into this for more than a little second is a disaster.

Don’t worry if you have a disabled baby, regardless of whether he or she is physically disabled, or mentally disabled. What you have to do is enjoy the moment.

You are one of the chosen ones! Yes, you are. When God created a baby, He chose several individuals to be the parents, so that the baby would be brought up very well. For disabled babies, He selectively chose the best individuals among those who were nominated to be parents. Those who were selected must be the first persons He saw that have enough courage and something special in them, so they are eligible to raise disabled babies.

Feeling special about yourself? You deserve that

So now you celebrate the arrival of your special baby. Next, you know that you’re not alone. There are many support groups for the disabled, either online or offline. You’ll be very happy finding someone in the same shoes with you.

Having friends from the same feather, or worse, will make you feel better. Eventually you’ll find that your baby has nothing wrong.

And don’t forget to get your bundle of joy registered with the Social Welfare Department of Malaysia (JKM). Being registered as a “OKU” he or she will enjoy all the privileges accorded to them. That’s what I did for my “OKU” baby, Fahry.

And I spend lots of time browsing the internet to find out more about Amniotic Band Syndrome, and you know what?  knowing it made me become very thankful for what had happened to my baby. About half of the babies with ABS won’t make it to their birth,  due to miscarriage. And some of the babies who could make it won’t survive due to the band effect on their vital organs. At least my baby only lost his fingers, toes and right foot. He almost had his heart removed by the band, but he was so fortunate it only cut the skin of his chest.

However, until now, there are not many support groups for Amniotic Band Syndrome in Malaysia, or shall I say.. I couldn’t find any. So I use my own personal blog to share with others about my baby. Thank God I made many new friends who have babies with the same syndrome, and lots of special mothers.

Being disabled or having disabled kids is not a curse, but an inspiration for us to be better persons. I was a person with very low self esteem, until I have Fahry, and he taught me to be confident so that in turn it could be instilled in him as well.

Find some help to assist you to raise your baby, that is, the hospital specialists, or any organizations which offer services to help disabled persons and/or parents with disabled kids. I brought my baby to Prince Court Medical Centre, before he was referred to Damansara Specialist, and he is now undergoing consistent physiotherapy and follow up with the Rehabilitation Clinic in Gleneagles Intan Medical Centre, Jln Ampang.

He got his first prosthesis at 9 months old (the youngest baby so far, it had to be customed made because he was too small!), all advised and managed by Gleneagles Intan (except for the payment ;>), so we just have to follow the advice and do a little research without have to hunt for everything by ourselves.

On top of that, the knowledge. Parents with disabled kids should equip themselves with all the what-how-which-why things, about what happened to their children. As for me, I don’t want anybody to feel sorry for my baby, for any constructive or corrective procedures that he had undergone, for eg. operation to trim his bones, etc. I want to instil in him that, it is a chance, not a curse for being born different.

So now you know what do to if you have a different little newborn. Just drop me a line if you need me!.

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