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Having a Physically Disabled Child? No Sweat.

It was a hectic evening when I gave birth to my second lovely progeny. I was 26 weeks into my pregnancy when I bled, and it did not stop even after 2 weeks, until his birth day. My child was born at 28 weeks, premature, too soon.

It wasn’t only that, more shocking news came later when the nurse told me that my baby was abnormal. He was different than his brother, who was born as a 3.3kg healthy baby with a loud cry. My second boy cried a little, shrieking, and so soft. He was very small, only 1.19kg at birth, and has no right foot…

I cried after seeing him that night. Not to blame the fate that had been written for us, but as a mother I felt so sorry for my baby. He won’t be able to walk and run like other kids, he won’t be able to do work that need him to use his fingers, because he had incomplete ones.  His toes were also missing at some parts, would he even be able to stand by himself?

Thanks to God, he gave me some insight, feeling, that my baby is no alien. The feeling came in an instant. There were lots of disabled people in this world, who were able to do things, even more than normal people. My baby was one of them. He could do extraordinary things, because he himself is extraordinary. Then I prayed to God for giving me the chance to experience this great journey with a child that had Amniotic Band Syndrom.

I was lucky to have a supportive husband and family, but I believe that the true strength must come from me, as I am the mother who gave birth and take care of my child. I am the first person that must accept my child no matter how he looks like. Eventhough he was so small and too fragile to hold, he was so cute. I gave him warm massages and sang lovely songs to him everyday, with some words so that he would be okay and reunite with us at home as soon as possible.

For him I did everything I could to ensure he could live like other normal people. Walking, running, swimming, going to school, socialize. From Sarawak we moved to Kuala Lumpur, as I found out there was no rehabilitation centre available in our area. I brought him to a Paediatrician and asked for a referral to a specialist so that my baby would get the best treatment. From the Paediatrician, he was referred to an Orthopaedic Surgeon and finally to the Rehab Specialist.

At 9 months old, he received his very first prosthesis and was marked as the youngest baby to be in prosthesis in this region.

Now, my son, who I named Fahry is already 2 years old. He walks, runs, jumps, climbs.. just like other normal toddlers. He talks a lot, and is a very fast learner. We plan to enrol him into swimming and music classes.

No sweat, baby.

This is my very first blog entry in MamaBabyWorld, where I love to share my experiences; pregnancy, giving birth, breastfeeding, caring, stimulating, teaching, bringing to the top; my second, premature baby boy who was born with Amniotic Band Syndrome, that makes him physically different. How I want to make him better than other normal people.

I hope with this little sharing I can give a drop of sweet inspiration in any mother’s heart, who might be facing the same situation.

Physically disabled? No sweat at all.
Mommy Lyna.

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